Moebius Syndrome Foundation Research Registry is Live
We are pleased to announce the launch of the Moebius Syndrome Foundation Research Registry! The Moebius Syndrome Foundation Research Registry creates a platform for patients around the world to strengthen their voices and share information about Moebius syndrome, a rare disorder characterized by facial paralysis (inability to smile) and limited eye movement.
Designed with the input of physicians, scientists, and individuals with Moebius syndrome, this global resource collects valuable data to better understand the full spectrum of Moebius syndrome. The registry aims to evaluate the range and variability of symptoms, treatments, quality of life, and more! Participants can stay informed about new studies and play an active role in improving care and understanding of the condition.
Join now and let your data tell your story!
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