Moebius Syndrome Foundation Research Registry


The Moebius Syndrome Foundation Registry serves the Moebius syndrome community. This is a free platform to share your journey. Join now!

For more information about how to register, click here.

For Patients

Get Involved

Information collected during this study may be used to help provide opportunities for patients and researchers to collaborate in the Moebius syndrome community.

For Researchers

Drive Research

This is a unique rare disease patient registry. Are you interested in using our data to further your Moebius syndrome research?