Moebius Syndrome Foundation Research Registry

Sponsor

Moebius Syndrome Foundation
1312 17th Street #976
Denver, CO 80202
info@moebiussyndrome.org
moebiussyndrome.org

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Registry Contact

Bryn Webb, MD
registry@moebiussyndrome.org
1-844-MOEBIUS (844) 663-2487

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Institutional Review Board (IRB)

North Star Review Board
learningirb.org
info@northstarreviewboard.org

An Institutional Review Board, for the purpose of protecting your/the Study Participant’s rights, has reviewed this registry. An Institutional Review Board is a group of people who are responsible for protecting the rights and welfare of people who participate in studies. For questions about your rights as a Study Participant in this Registry or to discuss other study-related concerns or complaints with someone who is not part of this Registry team, you may contact North Star Review Board at learningirb.org.

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Social Media & Newsletter

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Moebius Syndrome Foundation Newsletter Sign Up

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Visit the National Organization for Rare Disorders home page at rarediseases.org.